5月11日母亲节向阳义工联发起感恩之心公益义卖活动资料补充——贫血儿童小
母亲是巨大的,为了孩子,母亲乐意付出本身全部的齐备生命……患儿姓名: 韦艳菲
性别:女
父亲:韦家规
母亲:韦彩碧
出生日期:2008年5月7日http://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/174506w559h08gbdzdi90h.jpg
居住地点:广西省河池市东兰县建开村莫开屯23号
孩子病情:重型地中海血虚
治疗方案:寻常以输血和吃排铁药为根本维持本事.待筹款完毕后举行骨髓移植手术
必要资金:一期筹集仓内移植+治疗费30万元,二期筹集出仓后的一年抗排异费10万元
韦艳菲情况先容:
? ?? ? 女儿韦艳菲的到来给韦家规原来就不富裕的家庭增长了一份高兴和幸福,从原来的二人天下变成了三口之家,给在外打工的父亲无穷的动力同时肩膀上也多了一份责任。但是好景不长,小艳菲5个月大开始可爱的小面庞总是白白的,而且还经常发烧,过细的母亲非常发急带着小艳菲来到河池市铁路医院查抄,在颠末多方面的查抄后医生告知小艳菲大概换上了地中海血虚,发起到上级医院做进一步的查抄。母亲告诉了父亲小艳菲的状态,父亲听后放动手头工作带着攒下的积贮马不绝蹄的赶了返来,后颠末广州金域医学查验中心收罗小艳菲的血液样本化验后得出结论,小艳菲被确诊为重型地中海血虚,只有骨髓移植手术才气救回小艳菲的性命,但是手术费用高达40多万元,对于一个只靠着种地为生的家庭来说这简直就是个天文数字,父亲在外打工一个月才2000元钱,和小艳菲巨额的手术费用来说那就是九牛一毛啊。
? ?? ? 当父亲知道这个效果之后瞬间老了很多,心内里总是在不停的问本身:怎么办,怎么办啊?很多个夜晚背着妻子和小艳菲偷偷的留泪,但是父亲照旧毅然决定不管怎么样都要把小艳菲治好。为了给小艳菲骨髓配型,在2010年生下了小儿子,但是负担天使使命的小男孩和姐姐的配型未能乐成。小艳菲继承在病床上输血,排铁和病魔作斗争。现在艳菲每20天就要输血一次,每天要打10个小时的排铁针,只有如许才气维持她的生命。每次输血注射,孩子都是连哭带喊,但是远在外地的父亲每次给孩子打去电话问菲儿疼不疼,孩子总是懂事的说不疼。贫苦的家景让父母对于移植费用不敢奢望,只有逐日排铁,定期输血来稳固着艳菲的病情。
? ?? ?? ?
? ?? ? 现在已有6岁的小艳菲是个乖巧懂事的孩子,由于知道本身的身材和家庭的情况,每天都跟着妈妈,帮妈妈做些力所能及的事变。妈妈不肯意看到小艳菲如许,她渴望女儿像其他小孩子那样能学东西,以是过细的妈妈教小艳菲数数,从1数到10,现在小艳菲能在电话里一字不漏的说给爸爸听,她还说:“爸爸,等我能数到20了你是不是就返来看我和妈妈了呢?返来给我买好吃的可以吗爸爸?”每当听到女儿这么说的时间韦家规都在电话的那头偷偷的抹着泪。现在韦家规渴望本身的骨髓能和女儿的配型乐成,但是摆在他们面前的仍然是高额的手术费用,让他以为本身是那么的无助和绝望。
? ?? ?地贫的移植乐成率在70-80%,优劣常有渴望的,必要恒久输血和拍铁,并在比及符合的配型后要举行移植,菲菲妈妈渴望小艳菲能象别的小朋侪一样背上心爱的小书包去上学,但是小艳菲现在却要在每天睡觉前打上10个小时的排铁针!这是任何一个大人想像一下都难以遭受的痛楚。地贫并没有想像的那么可骇!地贫的孩子是很有渴望的!让我们一起资助孩子击跨病魔吧!
? ? 下面是向阳义工去医院看望小艳菲,陪孩子输血的视频,各人看一下吧,敬请关注小艳菲及她的母亲吧,谢谢!
? ?? ?http://v.youku.com/v_show/id_XNDMyNDUzMTAw.html
? ?? ?? ? 在此渴望社会上的盛意人们能来帮帮这个可爱的孩子,同心协力留孩子一命,让孩子完成骨髓移植,给她的发展铺条前路!http://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/172459a5wv6d8f63f5z103.jpghttp://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/172504rt72slq70y4e0ea7.jpghttp://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/172452ulecbr3lnc20nlb2.jpghttp://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/174101b1b8gfl8tg4zybzw.jpg三岁那年
http://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/173411j2jj24mgkfkkzdom.jpg四岁那年
http://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/173324pb0p102mubmb2cmu.jpghttp://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/173304eqzqrpr646d1cn86.jpg小艳菲家内的家具,屋顶是薄膜帐蓬式
http://www.simu001.cn/https://image.gxhc365.com/attachment/forum/201405/09/173230nzarp8kiriugkjkh.jpg小艳菲家的外貌
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